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Contribute
Long Island FSHD Foundation relies on private donations and grants to fund the vital scientific research needed to develop a treatment and cure for FSHD. We greatly appreciate your donations and support!

How to help?

Donate

   • By Internet

$
      • By Mail
     Long Island FSHD Foundation, Inc.
     4940 Merrick Road #187
     Massapequa Park, New York 11762
     USA

   • By Phone
     516-680-5752 

Volunteer

Please contact us if you are interested in volunteering your services or support in any way. We welcome all types of volunteer support; from professional services to assistance at fundraising events. We need you!

Email: FSHDFoundation@gmail.com

 

 
News & Events
Hockey Excitement!
NY Islanders are teaming up with LI FHSD Foundation!
Sat. Jan. 12, 2011 7pm
Islanders vs. Sabres

Portion of the proceeds will be donated to LI FSHD Foundation
Click here for ticket purchase info

Carmel Running Club's 5K
Sunday, October 10, 2010 Putnam County Veterans Memorial Park, Carmel, New York
Click here


Thank you Thomas Moran and Friends for a terrific evening of music at Massapequa Perk Coffee House!


Finally Some Hope
A fundraiser presented by the family & friends of Jimmy Burrows

Saturday, August 21, 2010
4pm to 8pm
Mulcahy's in Wantagh, New York

Click here for event & ticket info

The Hofstra v. Adelphi
Soccer Clinic Fundraiser game was a huge success!

LIFSHD Foundation Funds Research Project to Find FSHD Gene.

Project Headed by Dr. Eli Hatchwell, Director of the Genomics Core Facility and Associate Professor at SUNY Stony Brook



SOCCER EXCITEMENT!

Spring Soccer Clinic Fundraiser

followed by
Hofstra v. Adelphi Men's Game
April 10, 2010
John J. Burn's Park  
Massapequa
Pre-Register by dowloading
the Registration and Medical Release Forms & mailing them in! Clinic/Game Info


Christmas Light Display!
Photos from Christmas Light Display
Thank you to the Probst Family of Massapequa Park for
supporting us with their Fantastic Christmas Light Display.

Our Dinner Gala was a huge success. Thank you for your support! Click here

No Limits!  Be inspired by these amazing athletes!

Meet Kristin Duquette a High School swimmer who is training for the 2012 Paralympics in London!

Meet Ryan Levinson...
Triathlete, Surfer, Kiteboarder and much more
.

Meet Kalynn Dibble...
Triathlete defying the odds

 

Meet Anne Harland...
Inspiring People

 

 

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